Sunday, August 31, 2008

Lunch at Andrea's

We went out today to Andrea Foods in Vallejo (my classmate Joji's restaurant). We had the usual lechon (Andrea's specialty) plus ukoy and fresh lumpia. I didn't let Joji know we were there until we were almost done eating. Nevertheless, she sent us home with some food -- kalabasa and four kinds of desserts.

After lunch we got more balut for Ma. Then we went back to Andrea's because she forgot that she wanted dinuguan. Afterwards we went to Red Ribbon for sago at gulaman for Isa. As long as we were in the area, we also got chicken skin chicharon and siopao (chicken and pork).

Tito Lum cooked the balut for Ma. He said he used to sell balut when he was in college. He'd buy 1000 eggs and cook them in a barrel. Then the neighborhood kids would sell them for him at 3 for 1 peso. Half of that was his profit. The eggs would be gone in 3 days.

Later that day, Ma had two visitors. I think they were people she met at church. After they left, she fell asleep in her rocking chair. I finally woke her up at 8pm for dinner. Her appetite is very good, but she's down to 112 lbs.

Friday, August 29, 2008

High Blood Sugar

Ma's blood sugar has been pretty high lately, over 200. Pa has been giving Ma insulin every morning (she didn't need insulin before) and doubling her glipizide. Ideally, her blood sugar should be checked before every meal, but Pa has been checking it only once a day.

If Ma walked around the house a little bit more often, I think it would help lower her blood sugar. But she's so sedentary and always has lots of excuses as to why she can't move around more often.

Oh well, at least she's eating a lot.

Wednesday, August 27, 2008

Wasted Trip

We went to Dr. Khan today to have Ma's catheter changed. But Dr. Khan said there was no need unless it causes an infection. Pa was misinformed by Dr. Majid at Doctor's Medical. (Dr. Khan is with Summit/Alta Bates).

Ma didn't think she could walk that far, so we used the wheelchair when we went for her appointment. It's very easy to maneuver and doesn't take much room in the elevator.

Pa drained just over one liter of fluid from Ma's lung today.

Tuesday, August 26, 2008

Over One Liter of Fluid

Chemo #3 Day 21

Pa drained Ma's lung just once yesterday. He got 950ml. The bottle holds 1000ml. Today he got 700 in the morning and 600 in the evening. That's 1300ml in just one day.

Tomorrow Ma is going to the doctor to have her Pleurx catheter changed. Apparently it's supposed to be changed every month or so. It's been closer to two months for her.

Ma's appetite has been pretty good. She's been wanting some balut though, so Pa got her a dozen or so the other day. She had two visitors today who brought fresh vegetables from their garden. Another friend dropped off some arroz caldo for her.

I forgot to mention that Ate Eva, Raymond and their guest (Raymond's cousin, I think) came to visit on Sunday. They brought lots of Filipino goodies to eat.

Sunday, August 24, 2008

Increased Pleural Effusion

Chemo #3 Day 19

Pa usually drains about 500 ml of fluid from Ma's lung every morning. For the past week, he's been having to drain her twice a day for an average of 900 ml/day. Her oncologist had hoped that the chemo would help dry up her effusion, but it doesn't seem to have had any effect. I don't know if this is something to worry about.

Friday, August 22, 2008

Chemo Postponed

Chemo #3 Day 17

Ma had a follow-up appointment today with her oncologist, Dr. Irwin. He suggested, and we agreed, that instead of Ma having her next chemo next Wednesday, that we postpone it for another week. That'll give her more time to recover from her recent hospital stay and to enjoy feeling better a little bit longer. She had actually gained several pounds since coming home from the hospital just three days ago. How much of that weight gain is due to fluid retention, I don't know. But Ma said her appetite is back. Food still doesn't have much flavor though.

Pa followed up on the physical therapy and found out that Ma is not eligible. The problem is due to the catheter in the chest. They don't want to be liable if anything happens during physical therapy. I told Ma to just keep walking and move her legs even while sitting down. She's out of breath walking just 100 feet, then doesn't want to try anymore. She almost fell again this afternoon.

I didn't know that the hospital left the needle in Ma's port. Not sure why they did that when her chemo wouldn't have been for at least another week. Now that it's been postponed, it made even less sense to leave the needle in. So we stopped at the infusion center to have it taken out.

We stopped at the mall on the way home just for a change of scene and to have Ma's glasses adjusted. I pushed Ma all around the mall in her new wheelchair. It was easy to push her around, and I love how lightweight it is.

Wednesday, August 20, 2008

A Fall

Chemo #3 Day 15

Ma fell tonight in the bathroom. She said her walker got a bit too far from her, and she fell slowly but didn't seem to have hurt herself. I heard the loud clatter as she was falling. She couldn't get up by herself though.

One improvements is that, unlike yesterday, she can now get up from her rocker by herself.

On a sad note, Isa had her cat Tiger put to sleep this afternoon. The poor kitty had been sick with liver cancer and was in pain. Isa had been injecting her with painkillers, but it was time to put her down.

Tuesday, August 19, 2008

Back Home

Chemo #3 Day 14

Ma was released this morning. I was bad and didn't get to the hospital early enough. Pa had to leave the office to take Ma home. It took over two hours for her to get discharged.

Ma's leg muscles are too weak, and she can't get up by herself from her rocking chair. She can get up from the dining room chair though. And she can walk to the bathroom with her walker. I didn't make her walk through the living room for exercise. Ma said the hospital will arrange for in-home physical therapy for her.

Monday, August 18, 2008

Low Hemoglobin

Chemo #3 Day 13

Ma was dehydrated when she was admitted on Saturday so her blood test showed an inaccurate number. Once she was rehydrated, her hemoglobin count turned out to be low. She's receiving two units of blood. She may be discharged tomorrow if she feels better. Before she got the blood, she was complaining about feeling very weak. Sitting up made her feel bad. A couple of hours after she started getting blood, she felt much better.

The nurse gave Ma Megace this afternoon to stimulate her appetite. It seems to have helped. She ate very little at lunch but ate quite a bit more at dinner. She said the food also tasted better.

Her white blood cell count is down to 19, much better than the 33 on Saturday. Normal is closer to 10. Ma's oncologist said the high number is likely due to the Neulasta.

I hope the nurse doesn't forget to give her Lomotil. She needs it again.

Sunday, August 17, 2008

She Does Have an Infection

Chemo #3 Day 12

Ma's still in the hospital. No word on whether she can go home tomorrow. Pa said she has a urinary infection, but the nurse said it's not a UTI, so I'm not sure what she has. She's on Zosyn and Vancomycin.

Ma got annoyed with me because I keep telling her to go for a walk. She finally went, after many excuses, but the walk lasted less than 3 minutes. She decided she was tired after going barely halfway down the short hall.

Ma still has mouth sores, but they don't hurt anymore when she eats. She can't taste her food though and didn't eat much for dinner.

Saturday, August 16, 2008

Back in the Hospital

Chemo #3 Day 11

Ma has been feeling weak and had been asking Pa since yesterday to take her to the emergency room. She insisted again this morning, and Pa finally took her. Her white blood cell count (WBC) was 33.2. Normal range is 10.8 max. The doctor thinks Ma has a bad infection and decided to admit her.

It took several hours to get Ma to a room. She was still in the emergency room when I arrived even though I took my time getting to the hospital. She ended up in her old room on the telemetry floor. That's the floor where the patients are put on a wireless device that monitors their heart.

Dr. Reis, one of the pulmunologists, stopped by soon after Ma arrived in her room. He thinks there's nothing wrong with her. The weakness she feels is a side effect of the chemo. The high WBC could be due to the Neulasta shot she got on August 7, nine days ago. Also, she has no fever. She'll continue her antibiotic (Zosyn), and if she does well tomorrow, she can go home on Monday.

At the emergency room, Ma's nurse knew how to access her port, so he didn't have to use her arm to give her IV. They still used her arm to draw blood though. When I arrived in the emergency room, her antibiotic drip was done, but she was not given Heparin to ensure her port stays clear, nor was she on a saline drip to keep her line open (TKO). I insisted that Pa ask her nurse to put her on saline TKO, and the nurse had no problem doing so.

Kuya Jess, Helen, and their youngest son Jerel drove up from LA to visit Ma. That was really nice of them. Of course they expected to visit her at the house, not at the hospital. They arrived in the late afternoon with Kuya Richard and brought a box of mamons. Yum! I forgot to take photos, darn it. By the way, Monday is Kuya Jess' birthday. He turns 30 x 2. Happy birthday!

Ma had other visitors. One of the nurses upstairs was expecting Ma on her floor before they decided to change her room. She came down anyway to see how Ma's doing. The security guard downstairs, who's a patient of Pa's, also stopped by to say hello.

I left the hospital around 8:30pm after Pa came back from the house. He is staying overnight in Ma's room. There's a second bed in the room that he can use.

Thursday, August 14, 2008

Cold Sores Almost Healed

Chemo #3 Day 9

Ma put antibiotic ointment on the cold sores on her lips yesterday, and the sores are almost completely healed. Amazing. Her mouth sores are still there though.

She still has leg pain. She took Darvocet for it, but I told her to try Tylenol next time.

Ma says she's losing her appetite, but at least she's making an effort to eat. She says she can't taste the lasagna her friend brought over but insists she can taste the almost flavorless protein powder I added to her milk.

Wednesday, August 13, 2008

Cold Sore

Chemo #3 Day 8

I didn't see Ma today, but she said she has a sore on her lip. That's a new development and something she hasn't had before.

Ice chips help with the pain in her mouth, and she was able to eat solid food today.

Both her ankles hurt, and she needed Darvocet for the pain.

Tuesday, August 12, 2008

Painful Mouth Sores

Chemo #3 Day 7

Ma's mouth sores are really bothering her. The lidocaine provides a little relief but not enough. She asked for soup tonight because she has difficulty chewing. The cocktail prescribed for her (Nystatin, lidocaine, Benadryl & Maalox) is not a miracle drug and doesn't make the sores heal.

A quick internet search said to try something called CankerMelts. It's a disc made from licorice extract that you put directly on the sore. I bought some tonight along with L-Lysine tablets. Ma wants to wait till tomorrow to try them.

At least she didn't get much pain in her leg today. Her ankle hurt for a while, but it went away on its own. No Darvocet required.

Sunday, August 10, 2008

Pain is Right on Schedule

Chemo #3 Day 5

Ma has muscle pain in her left leg. It started yesterday, as I expected. She's taking Darvocet for the pain.

Her mouth sores are back. She used lidocaine before eating to take away the pain. She also rinses with the cocktail of Nystatin, lidocaine, Benadryl, and Maalox that Dr. Irwin prescribed a couple of weeks ago.

I gave Ma a printout on cystitis. If she's not going to drink enough water, she should at least know what symptoms to expect when her bladder gets affected. Blood in the urine and painful urination just don't sound good to me.

I ordered the lightweight wheelchair. It's about 8 lbs. lighter than the one Tita Belen has. The main difference is that Tita Belen's chair has 12" wheels in the back, nice for rough terrain. But the one Ma has is fine for light use. I wanted something really light. It's about 19 lbs. with the footrests and 15 lbs. without. The back folds down in addition to the seat, so it doesn't take up that much room in the trunk. Ate Eva lent me Kuya Rey's wheelchair (probably from Kaiser), but it's about 43 lbs. with the footrests and 35 lbs. without. Plus it's too bulky.

Here's Ma in the wheelchair.


She also likes the rocking chair we got last week at Costco.

Thursday, August 7, 2008

Water

Chemo #3 Day 2

It is impossible to get Ma to drink 4 bottles of water a day.

Wednesday, August 6, 2008

Chemo Almost Canceled

Chemo #3 Day 1

Ma's chemo almost got canceled today. She's supposed to have a blood test done two days before her chemo. Because she just had one done last Wednesday, we thought that was good enough. It's not. The cancer center wants more recent numbers for her white blood cell and platelet counts. So Ma had her blood drawn yesterday afternoon, but it could take 24 hours to get the results back. The cancer center had actually called this morning to cancel her chemo today, but they called back half an hour later to say the test results came in this morning after all.

It was almost noon when we arrived at the cancer center. First thing they did was give Ma a warm blanket fresh out of the oven. Then they gave her lunch. But Ma doesn't like their lunch, and she ate before leaving the house. She had their soup though.

The nurse gave Ma the usual pre-meds -- Benadryl, Pepcid, Decadron and Zofran. It usually takes a while for the pharmacy to have the meds ready. As a result, the Taxotere wasn't started till 1:30pm. They started it off slowly and checked her vitals every 5 minutes to make sure she doesn't have any bad reactions. After 20 minutes, they bumped up the drip to the normal rate. It took 1.5 hours to finish the Taxotere. The Cytoxan was started around 3:10pm and also took 1.5 hours. We were out of there by 5pm.

I tried an experiment today and had Ma chew on ice while getting her chemo. Some say it might keep her from getting mouth sores. We'll see.

Ma's red blood cell count is too low, so Pa has started her on iron pills. Those pills cause constipation. We're hoping it'll help counteract Ma's diarrhea.

Here's Ma getting her Taxotere.













This is the infusion room at the cancer center after almost all the patients had left. There are 6 recliners. You can see Ma's blanket in the lower left. There's another recliner behind the curtain at the end. As you can see, it's a bit cramped. Thank goodness there usually aren't many guests accompanying the patients. Today I seemed to be the only one, and I was seated beside Ma.

Tuesday, August 5, 2008

Drink More Water

Chemo #2 Day 21

Ma is having her third chemo tomorrow. One of the drugs can cause bladder problems, so she'll have to drink at least four 16 oz. bottles of water a day for several days to flush out the drug. She's been drinking only 2 bottles a day. I tried to make her drink three, but it seems the best she can manage is 2.5 bottles.

Sunday, August 3, 2008

Food, Food, and More Food

Chemo #2 Day 19

Ma felt well enough to go out to lunch, so we went to Andrea's in Vallejo. The restaurant is co-owned by my high school classmate Joji. Joji had visited Ma when she was still in the hospital and brought lots of food.

I was hoping to pay for our meal before Joji saw us, but no such luck. She let me pay for the dinuguan, puto, daing na bangus and rice, but she wouldn't let me pay for the double order of lechon. Then she brought over ampalaya, pinakbet (kalabasa), a plate of desserts (banana-Q, turon, kariyoka), and melon coolers. Ma ate a lot of food, but we still had lots of leftovers. She really liked the pinakbet, so Joji gave us more to go. She also wouldn't let me pay for the okoy that Ma wanted for later.

Afterwards we stopped at Seafood City for more food. Ma was able to walk a short distance inside the mall although she spent most of the time sitting while we shopped for goodies.

In the afternoon, friends stopped by to visit. They brought nectarines, giant peaches and corn. Another friend stopped by with paksiw na lechon and more corn. And then another friend stopped by with arroz caldo.

Ma was so full from her lunch that she didn't eat much dinner. If she keeps eating as much as she did today, maybe she can put on a couple of pounds by her next chemo on Wednesday.

Friday, August 1, 2008

A Trip to Costco

Chemo #2 Day 17

Tita Belen, Tito Pepe, and Ate Vicky stopped by today, just in time for lunch. They brought dim sum and bangus. We also had pusit, bistig and monggo soup. Ate Vicky commented that Ma ate a lot. They stayed for about 2 hours.

Afterwards we went to the oncologist (Dr. Irwin) for Ma's follow-up appointment. Her triglycerides and uric acid levels are way too high. Pa will give her the appropriate medications. She must be taking about 20 pills a day now. Most of those she was already taking before she got cancer.

I asked Dr. Irwin if I can give Ma acidophilus for her diarrhea/soft stools. He said it was okay, so I got her a bottle of pills today. Acidophilus is the stuff you find in yogurt. It restores the good bacteria in your stomach.

After the appointment, we went to Costco to find a comfortable chair for Ma. We had borrowed Tita Belen's wheelchair. It worked quite well, and Ma found it comfortable. At Costco, Ma didn't like the recliner, but she liked the rocking chair. When Pa tried to pay for it, he discovered he didn't bring his checkbook. They wouldn't take my check. We didn't have enough cash. Neither one of us had a debit card, and they don't take credit cards. Fortunately we ran into a patient of Pa's, Rafael, and he kindly lent us $100. I wrote him a check to cover it. Whew! Pa will borrow a truck from friends and pick up the rocking chair tomorrow morning.

After we paid for our other purchases at Costco, we followed Rafael to his house because he had some peaches he wanted to give us. He has a big house in the hills of El Cerrito. His garden has lots of fruit trees. He also has a pet hen that lays lots of eggs. Yep, it was a free-range chicken. I even got to pet it without getting pecked. We went home with peaches and lemons from Rafael's trees and brown eggs from his chicken.